Migraine Aura app is an application (app) for smartphones, and is an innovative tool, which aims to
enhance the research on migraines with aura. The app supports its users with a tool for documenting aura
symptoms at the moment they occur.
How to Use the App
We hope you will help the headache research to record at least 3 aura episodes with this app, but
preferably more. When the aura starts you will activate the app on the smartphone. Every 1-2 minutes the
app will ask you to describe your symptoms.
To get confident with the tasks that you will receive during the aura and to pre-select the most common
disturbances you have experienced so far, you can use the aura attack test function.
Conditions
The app does not share any personally identifiable data of the app user. The app stores all of its data
in a local storage, where the app is installed. The user can choose whether to synchronise the app with
a secure server storage. If this is chosen by the user, the completely anonymised data will be shared
with the secure server storage. The app user has an option to stop the synchronisation.
The app user can delete all data registered on him/her, both in the local and server storage. The app
does not collect data from the phone of the user.
Headache researchers in Norway and abroad will have access to the database. It will not be possible to
identify individual patients. Regional Committees for Medical and Health Research Ethics (REC-Central)
and the Data Protection Office at St. Olavs Hospital, have concluded that the app is not covered by the
inquiry obligation, as all data is collected in an anonymised form.
Department of Neuromedicine and Movement Science (INB) at NTNU has responsibility for processing the
data registered in the app, and there is an agreement on responsibility for data processing with the
Norwegian consulting company, Fominykh Consulting, a data programme producer for research, education and
health.
The app is being continuously developed. Functions and content can be altered without a warning. The
developer does not take any responsibility for use, errors or loss of user data.
Questions about the app or technical issues can be addressed to: Fominykh Consulting
contact@fominykh.consulting
Development
Concept and leadership:
Erling Tronvik (Norwegian University of Science and Technology - NTNU, Norway)
Michele Viana (Headache Science Center, C. Mondino National Neurological Institute, Pavia, Italy)
Jakob Moller Hansen (Danish Headache Center, Denmark)